This is the kind of appeal that the family of Elizabeth Sciabarra (Ms. Ski to her students) never wanted to post. But we are facing some very difficult realities. My sister became seriously ill and nearly died in November 2020, which was followed by extensive spinal surgery in mid-March 2021. We nearly lost her again in mid-October 2021. Since that time, she has been receiving in-home hospice. As her devoted brother, I have been her primary caregiver—despite dealing with my own lifelong medical issues. As my own health has been compromised over these many months, we have been compelled to turn to health aides to assist with my sister’s in-home care.
My sister brings in a pension from her many years of service as an educator in the New York City public school system. She also brings in a Social Security retirement check. Given the state of American healthcare, she is in the unenviable position of being in that great “middle” ground where so many others find themselves—not “wealthy” enough to cover all her medical expenses; too “wealthy” to qualify for Medicaid. As a woman who has worked for over fifty years, and paid millions of dollars in taxes to local, state, and federal governments, she qualifies for a single Medicare home health aide, 4 hours a day, 5 days a week, though she needs 24/7 care.
Having maxed-out some assistance from the Council of Supervisors and Administrators for both the 2021 and 2022 calendar years, she is spending, on average, approximately $15,000 a month on aides and other non-insured medical supplies—more than she earns with her pension and Social Security combined. She has sold her car, exhausted her savings, and cashed-in retirement accounts—paying taxes on that too. Complete financial collapse can be avoided if my sister is placed in a Medicare-insured inpatient hospice, which would constitute a dramatic change to her quality of life. She wanted to remain at home, but without the financial capacity to do so, she will be compelled to make a decision that will break all our hearts. And hers most of all. Out of personal embarrassment and a sense of pride, she never wanted to make an appeal such as this. But after being in-and-out of hospitals and medical facilities for 17 months, even she realizes that this situation is financially unsustainable, threatening her ability to pay for even the basic necessities of life … food, clothing, and shelter.
We appreciate anything anyone can offer; we have no hope of paying anyone back. We only hope that a woman who, as an educator, devoted her life to helping thousands upon thousands of children and young adults, can raise enough funds that would allow her a level of dignity moving forward—despite the serious health challenges she continues to face every hour of every day.
Chris Matthew Sciabarra (on behalf of my sister)